CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD and MSA and develop a sense of community.

This year’s CurePSP Virtual Fall Family Conference will consist of pre-recorded sessions from our Orlando Fall Family Conference and live Q&A sessions. The event will be split into two parts. The first part will be shown on Tuesday, October 31st, and the second on Thursday, November 2nd.

We partnered with the University of Florida and the University of South Florida to provide interactive discussion groups and informative presentations on research updates, navigating care, managing dysphagia, enhancing accessibility in the home, nutrition and more! 

All sessions will be recorded and posted on our YouTube after the event. Registration is free of charge.

Register

Agenda* (in Eastern Time)

1:00 – 1:05 PM: Opening Remarks

Speaker: Kristophe Diaz 

1:05 – 1:25 PM: Managing Dysphagia: Tools and Tips for Success

Pre-recorded presentation from the Orlando Conference.

Speaker: Alexandra Brandimore, PhD, CCC-SLP

Dysphagia, or difficulty with swallowing, is a common symptom of PSP, CBD and MSA and can present eating and safety complications. In this interactive session, Dr. Alexandra Brandimore will provide valuable guidance and strategies to help you monitor and adapt to changes to swallow function throughout the diagnosis.

1:25 – 1:50 PM: Practical Strategies for Nutritional Health

Pre-recorded presentation from the Orlando Conference.

Speaker: Matt Beke, MS, RDN, LDN

PSP, CBD and MSA can pose unique challenges in maintaining optimal nutritional health. Matt Beke will educate you on innovative approaches, evidence-based strategies and beneficial resources to enhance your overall well-being and achieve necessary nutritional goals.

1:50 – 2:45 PM: Updates on Progressive Supranuclear Palsy (PSP) & Corticobasal Degeneration (CBD): Tale of Two Cousins

Pre-recorded presentation from the Orlando Conference. Dr. McFarland will answer questions during the live Q&A later in the day.

Speaker: Nikolaus McFarland, MD, PhD

PSP and CBD share common symptoms and pathology, two “cousins” in the frontotemporal lobar dementia family. Dr. McFarland will discuss the features of each disease, commonalities and differences. He will present advances in new diagnostic criteria, imaging biomarkers and pathology, and discuss treatment options and strategies for patients and care partners.

2:45 – 3:15 PM: Break

3:15 – 3:40 PM: Navigating Care Across the Diagnosis Journey

Pre-recorded presentation from the Orlando Conference. Jessica will answer questions during the live Q&A later in the day.

Speaker: Jessica Shurer, MSW, LCSW

Planning for future needs and making necessary decisions around care can feel overwhelming at times, and it can be hard to know where to start. In this interactive session, Jessica Shurer will discuss resources that PSP, CBD and MSA patients and families often use as they navigate their diagnosis journey. Participants will be able to ask questions and learn tips from one another.

3:40 – 4:25 PM: Live Q&A Panel

Speakers: Nikolaus McFarland, MD, PhD, Jessica Shurer, MSW, LCSW and Joanna Teters

Joanna Teters, Manager of Support Programs at CurePSP, will lead a live Q&A session with Jessica Shurer and Dr. Nikolaus McFarland. They will be answering questions that were submitted during registration as well as those that are asked in the live chat.

4:25 – 4:30 PM: Closing Remarks

Speaker: Jessica Shurer 

4:30 – 5:30 PM: Optional Interactive Discussion Groups via Zoom

During these discussion groups, you’ll have the opportunity to connect with other event attendees and talk through the subjects covered during the sessions.

*Agenda subject to change.