Have you been recently diagnosed with PSP or CBD? Is your doctor unfamiliar with PSP and CBD and you would like a second opinion? Are you unsure of where to turn for qualified, professional medical advice?
The CurePSP Centers of Care network was formed in 2018 to help you and your family find the answers to these questions, with the aim of building a network of centers across the United States and Canada where PSP and CBD patients and caregivers can find medical help.
Mission
- To help PSP and CBD patients find the best possible local/regional care
- To increase awareness of PSP and CBD spectrum disorders providing educational material to patients, caregivers, and healthcare professionals
- To provide local/regional resources for physicians seeking information about PSP and CBD
- To promote collaboration between centers and to optimize standards of patient care and to establish hubs for PSP/CBD (pre-)clinical research
Establishing CurePSP Centers of Care will provide PSP and CBD patients with greater access to care from medical centers that have experience with the disease, increase general awareness of PSP, CBD, and other related diseases, and allow outside providers to easily identify centers to refer patients for clinical trials and better overall disease management.
The identification of designated CurePSP Centers of Care will also form a network of experts in PSP/CBD clinical care to improve patient diagnosis and management. As research is paramount to advancing our knowledge of the pathophysiology and subsequent identification of targets for therapeutic agents, CurePSP Centers of Care will create a network that will be an essential component for the success of large clinical trials. In a future step (with additional funding), the CurePSP Centers of Care could also improve communication between centers in order to share research protocols, rating scales, and updates on trials.
This initiative will increase awareness of PSP and CBD at a local, national, and international level. International exposure increases the opportunity to collaborate with centers in other countries to improve patient care and innovations in research. The program will expand to cover the United States and Canada, and if your preferred care location is not on the map, please encourage to them to apply.
Click here to download a PDF of our complete list of Centers of Care
Center Finder
To use the map:
- Enter your city, state, ZIP code, postcode, or even your full address into the Map Locations search bar at the bottom of the map
- Adjust the Select Radius to find results in your area
- Select “Center of Care” under the Select Category Menu to bring up the CurePSP Centers of Care
CurePSP is aware that entries on this map may change – if you find an incorrect listing, please help us by contacting info@curepsp.org, subject line: Interactive Map Corrections.
Medical Steering Committee
Dr. Irene Litvan (UCSD) ![]() |
Dr. Lawrence Golbe (Rutgers) ![]() |
Dr. Alex Pantelyat (Johns Hopkins) ![]() |
Dr. Brent Bluett (Stanford) ![]() |
Centers of Care Disclaimer
No Liability for Operation of the Centers or External Sites
The CurePSP Centers of Care are a loose network of medical centers that will provide PSP and CBD patients with greater access to medical centers that have experience with the disease, increase general awareness of PSP, CBD, and other related diseases, and allow outside providers to easily identify centers to refer patients for clinical trials and better overall disease management.
Medical Centers are invited to apply to become a CurePSP Center of Care. Based on CurePSP’s review criteria, the CurePSP Center of Care designation is intended only to recognize participation in the program. The quality of provided care is the responsibility of the Center. CurePSP has no responsibility for the quality of care or activities of the Center. CurePSP assumes no liability in connection with operation of a CurePSP Center of Care or in relation to its designation as such.
CurePSP will list the Center on its web site. The CurePSP website is provided for informational purposes for healthcare professionals, patients, and their caregivers and is not intended to provide specific medical advice, diagnosis, or treatment. Patients should always seek advice from a physician or other qualified healthcare provider for individual medical needs. The CurePSP website may provide links to other internet sites; however, CurePSP is not responsible for the availability or content of these external sites.
Contact Us
If you have any further questions with regard to the CurePSP Centers of Care.
1216 Broadway, 2nd Floor
New York, NY 10001
Phone: 347-294-2871
E-Mail: info@curepsp.org