The Cherie Levien Quality of Life Fund

Cherie Levien
Cherie Levien

The Cherie Levien Quality of Life Fund was created to provide respite for caregivers of patients suffering from prime of life neurodegenerative diseases including PSP, CBD, or MSA while knowing that professional services are in place for their loved one. Research indicates that even temporary or intermittent relief of caregiving demands can help reduce stress and improve the quality of day-to-day life for caregivers as well as for the person who is suffering with the disease. Read more on the Cherie Levien Quality of Life Fund here. 

The Fund provides grants of up to $2,500 to be spent on in-home care services by our contracted provider Griswold Home Care. You will not need to pay directly; Griswold will be paid directly by CurePSP, up to the limits of your grant. 

Am I Eligible?

All applicants who have a PSP, CBD, or MSA patient being cared for at home are eligible.

Our contracted national care provider is Griswold Home Care, and you must live within their service area. Please check their locations here. If you are not located in one of these areas, unfortunately we are unable to provide respite grant awards at this time. If you are not eligible and you are a family in need with PSP, you can apply to the Allan Marcus Fund.

If you need further help finding a Griswold location near you, please contact Griswold at 1-800-474-7965. They will help you to locate the closest office.

Further eligibility requirements:

  • This grant is only available for those living in the United States and within an acceptable range of a Griswold Home Care office. Please check here: www.griswoldhomecare.com.
  • Individuals must have a diagnosis of PSP, CBD, or MSA and the diagnosis must be documented by a physician.
  • Only in-home respite services are covered. The patient must be living at home or with a family member and not in an assisted living or nursing facility.

How Do I Apply?

Application forms are available for download here (PDF or Word). Or to request a print copy via regular mail, contact Joanna Teters at teters@curepsp.org or by phone at 347-294-2871.

Please include in your application

1. the application form AND
2. the narrative AND
3. the physician diagnosis verification form.

You must check if you live within the Griswold Home Health Care service area. If you are not located in one of these areas, unfortunately we are unable to provide respite grant awards at this time. If you need further help finding a Griswold location near you, please contact Griswold at 800-474-7965. They will help you to locate the closest office.

Please send the completed application via e-mail, fax, or regular mail to:

CurePSP
Attn. Joanna Teters

1216 Broadway, 2nd Floor
New York, NY 10001

Office: 347-294-2871
Fax: 410-785-7009
E-mail: teters@curepsp.org

Grant application deadlines are: January 31, April 30, July 31, and October 31 of each year.

Successful applicants will be contacted approximately two weeks after the deadline and given instructions on how to initiate services.

How Can I Use the Grant?

The grant amount is $2,500 and is to be used over a period of 1 year from approval. Only in-home respite services from Griswold Home Care are reimbursable. The patient must be living at home or with a family member and not in an assisted living or nursing facility.

Grants are limited and while not all applicants will be successful, re-submissions are allowed and encouraged. If your family has already received grant monies, re-submission is not permitted.

Further Information and Contact

We are actively fundraising to support more home care programs to meet the tremendous need of patients and caregivers. If you would like to become involved in a fundraising event to increase the reach of this fund, please contact Joanna Teters at 347-294-2871 or at teters@curepsp.org.

Please read more about the The Levien Legacy Fund here and learn how to donate to this wonderful program.

For more information, please contact Joanna Teters:

Office: 347-294-2871
E-mail: teters@curepsp.org

1216 Broadway, Floor 2
New York, NY 10001