The Cherie Levien Quality of Life Fund

Cherie Levien
Cherie Levien

The Cherie Levien Quality of Life Fund was created to provide respite for caregivers of patients suffering from prime of life neurodegenerative diseases including PSP, CBD, or MSA while knowing that professional services are in place for their loved one. Research indicates that even temporary or intermittent relief of caregiving demands can help reduce stress and improve the quality of day-to-day life for caregivers as well as for the person who is suffering with the disease. Read more on the Cherie Levien Quality of Life Fund here. 

The Fund provides grants of up to $2,500 to be spent on in-home care services by either our contracted provider Griswold Home Care, or a home care agency mutually agreed upon by the awardee and CurePSP. You will not need to pay directly; Griswold or the agreed upon provider will be paid directly by CurePSP, up to the limits of your grant. 

Am I Eligible?

All applicants who have a PSP, CBD, or MSA patient being cared for at home are eligible.

Our contracted national care provider is Griswold Home Care, please check their locations here. If you are not located in one of these areas, you must provide the names of three local home care agencies that you would like to engage.

If you need further help finding a Griswold location near you, please contact Griswold at 800-474-7965. They will help you to locate the closest office.

Further eligibility requirements:

  • Individuals must have a diagnosis of PSP, CBD, or MSA and the diagnosis must be documented by a physician.
  • Only in-home respite services are covered. The patient must be living at home or with a family member and not in an assisted living or nursing facility.

How Do I Apply?

Application forms are available for download here (PDF or Word). Or to request a print copy via regular mail, contact Joanna Teters at teters@curepsp.org or by phone at 347-294-2871.

Please include in your application

1. the application form AND
2. the narrative AND
3. the physician diagnosis verification form.

You must check if you live within the Griswold Home Health Care service area. If you are not located in one of these areas, please provide three names of local home care agencies that you would like to engage. 

Please send the completed application via e-mail, fax, or regular mail to:

CurePSP
Attn. Joanna Teters

1216 Broadway, 2nd Floor
New York, NY 10001

Office: 347-294-2871
Fax: 410-785-7009
E-mail: teters@curepsp.org

Grant application deadlines are: January 31, April 30, July 31, and October 31 of each year.

Successful applicants will be contacted approximately two weeks after the deadline and given instructions on how to initiate services.

How Can I Use the Grant?

The grant amount is $2,500 and is to be used over a period of 1 year from approval.  The patient must be living at home or with a family member and not in an assisted living or nursing facility.

If I Have Already Been Awarded A Grant, Can I Reapply?

Grants are limited and while not all applicants will be successful, re-submissions are allowed and encouraged. If your family has already received grant monies, re-submission is accepted one year after the initial grant was awarded. 

Further Information and Contact

We are actively fundraising to support more home care programs to meet the tremendous need of patients and caregivers. If you would like to become involved in a fundraising event to increase the reach of this fund, please contact Joanna Teters at 347-294-2871 or at teters@curepsp.org.

Please read more about the The Levien Legacy Fund here and learn how to donate to this wonderful program.

For more information, please contact:

Joanna Teters, Community Outreach and Resource Manager

Office: 347-294-2871
E-mail: teters@curepsp.org

1216 Broadway, Floor 2
New York, NY 10001