The Cherie Levien Quality of Life Fund
The Cherie Levien Quality of Life Fund was created to provide respite for carepartners of PSP patients while knowing that professional services are in place for their loved one. Research indicates that even temporary or intermittent relief of caregiving demands can help reduce stress and improve the quality of day-to-day life for carepartners as well as for the person who is suffering with the disease. (Read more on the Cherie Levien Quality of Life Fund here.)
The Fund provides grants of $2,500 to be spent on in-home care services by exclusive provider Griswold Home Care.
Am I Eligible?
To be eligible, applicants must first be in a Griswold Home Care service area, which can be found here.
If you need further help finding a location near you, please contact Griswold at 1-800-474-7965. (If you don’t live in an area with a Griswold location, we recommend that you do not apply for this grant, as unfortunately we are unable to fund home care services offered by other agencies).
Further eligibility requirements:
- This grant is only available for those living in the United States.
- Individuals must have a diagnosis of PSP and the diagnosis must be documented by a physician.
- Only in-home respite services are reimbursable. The patient must be living at home or with a family member and not in an assisted living or nursing facility.
How Do I Apply?
Once the form is filled out completely, either scan and email, fax or mail to:
Trish Caruana, MSW
Vice President-Patient & Carepartner Advocacy
404 Fifth Avenue, 3rd Floor
New York, NY 10018
Grant application deadlines are:
January 31, 2017
April 30, 2017
July 31, 2017
October 31, 2017
Successful applicants will be contacted approximately 2 weeks after the deadline and given instructions on how to initiate services.
How Can I Use The Grant?
The grant amount is $2500 and is to be used over a period of 1 year from approval. Only in-home respite services are reimbursable. The patient must be living at home or with a family member and not in an assisted living or nursing facility.
Grants are limited and while not all applicants will be successful resubmissions are allowed and encouraged.
We are actively fundraising to support more home care programs to meet the tremendous need of patients and caregivers. If you would like to become involved in a fundraising event to increase the reach of this fund, please contact Trish Caruana at 443-578-5667 or at firstname.lastname@example.org.