The Cherie Levien Quality of Life Fund

Cherie Levien
Cherie Levien

The Cherie Levien Quality of Life Fund was created to provide respite for carepartners of patients suffering from prime of life neurodegenerative diseases including PSP, CBD, or MSA while knowing that professional services are in place for their loved one. Research indicates that even temporary or intermittent relief of caregiving demands can help reduce stress and improve the quality of day-to-day life for carepartners as well as for the person who is suffering with the disease. (Read more on the Cherie Levien Quality of Life Fund here.) 

The Fund provides grants of $2,500 to be spent on in-home care services by provider Griswold Home Care or other professional in-home care services. You will not need to pay these providers; they will be paid directly by CurePSP, up to the limits of your grant. 

 

Am I Eligible?

All applicants who have a patient being cared for at home are eligible. Our preferred provider is Griswold Home Care and you may find their locations here. If you are not located in one of these areas, you may still apply and CurePSP will endeavor to locate professional in-home care services in your area.

If you need further help finding a location near you, please contact Griswold at 1-800-474-7965

Further eligibility requirements:

  • This grant is only available for those living in the United States.
  • Individuals must have a diagnosis of PSP, MSA or CBD and the diagnosis must be documented by a physician.
  • Only in-home respite services are covered.  The patient must be living at home or with a family member and not in an assisted living or nursing facility.

How Do I Apply?

Application forms are available for download here, or to request a print copy via regular mail, contact Joanna Teters at teters@curepsp.org or by phone at 347-294-2871.

Once the form is filled out completely, either scan and email, fax or mail to:

Joanna Teters
Office: 347-294-2871
Fax: 410-785-7009
teters@curepsp.org

CurePSP
404 Fifth Avenue, 3rd Floor
New York, NY 10018

Grant application deadlines are:

January 31, 2018
April 30, 2018
July 31, 2018
October 31, 2018

Successful applicants will be contacted approximately 2 weeks after the deadline and given instructions on how to initiate services.

How Can I Use the Grant?

The grant amount is $2,500 and is to be used over a period of 1 year from approval. Only in-home respite services are reimbursable.  The patient must be living at home or with a family member and not in an assisted living or nursing facility.

Grants are limited and while not all applicants will be successful resubmissions are allowed and encouraged. 

Further Information

We are actively fundraising to support more home care programs to meet the tremendous need of patients and caregivers. If you would like to become involved in a fundraising event to increase the reach of this fund, please contact Joanna Teters at 347-294-2871 or at teters@curepsp.org.