Family Conferences

Among its various educational activities, CurePSP sponsors and organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD and MSA and to develop a sense of community. We recognize that these diseases present daily challenges for patients and families.

The conferences include various speakers with in-the-field expertise - neurologists and movement disorder specialists who work directly with patients and their families. These experts address issues related to day-to-day life including the best ways to manage symptoms, the impact of the diseases on the family, and how to cultivate perspective of meaning and joy despite the struggles of the disease.

In addition to the educational facts learned during the session, patients, caregivers, and families learn that they are not alone. Attendees leave the meeting having forged new friendships in the PSP, CBD and MSA communities.

CurePSP strives to meet the needs of those who attend our conferences and actively seeks feedback to improve future programs. We place great value in identifying the topics or speakers that are of the greatest interest to attendees.

Upcoming Conferences

International Parkinson and Movement Disorder Society - 50 Years of Progressive Supranuclear Palsy
October 10-11, 2014
Munich, Germany

This continuing education course is intended for general medical practitioners, neurology residents, specialist nurse practitioners and other paramedical equivalents in related fields with a working knowledge of diagnosis and general management of this condition.

Despite that research on PSP and related disorders has recently improved at all levels - molecular, brain circuitry, epidemiological and clinical - there has not been a single MDS-sponsored meeting about this devastating disorder. This course is intended to fill this gap, combining an update of the current understanding of PSP and a basic teaching course for those entering into this field. The most active researchers in the field of PSP from Europe will be invited to share their current knowledge and to discuss future research with the audience.

CurePSP 2015 Family Conference
February 7, 2014
Best Western Gateway Grand
Gainesville, Florida

More information coming soon!


Past Event - 2013 Rocky Mountain Family Conference

  • Update on PSP and CBD

    Rajeev Kumar, MD
    Colorado Neurological Institute, Movement Disorders Center
    Watch on YouTube

  • Update on MSA

    Aaron Haug, MD
    Colorado Neurological Institute
    Watch on YouTube

  • Morning Speaker Q&A: PSP, CBD and MSA

    Rajeev Kumar, MD
    Aaron Haug, MD
    Watch on YouTube

  • Improving Day-to-Day Mobility

    Linda Vigil, MSPT
    Colorado Neurological Institute
    Watch on YouTube

  • Little Things Can Make a Big Difference - Tips from an OT

    Kristina Anderson, OTR
    Colorado Neurological Institute
    Watch on YouTube

  • Rehabilitative Services - Speech-Language Pathology

    John Dean, MA, CCC-SLP
    Summit Rehab at Life Care Center of Longmont
    Watch on YouTube

  • Afternoon Speaker Panel Q&A: Rehabilitative Therapy

    Linda Vigil, MSPT
    Kristina Anderson, OTR
    John Dean, MA, CCC-SLP
    Watch on YouTube

Past Event - 2013 Boston Family Conference

  • Opening Words and Welcome

    Richard Gordon Zyne, DMin
    President-CEO, CurePSP
    Janet Edmunson, MEd
    JME Insights
    Patricia Richardson
    Actress and CurePSP National Spokesperson
    Download Slides | Watch on YouTube

  • Medical Update on PSP

    Lawrence Golbe, MD
    UMDNJ Robert Wood Johnson Medical School
    Download Slides | Watch on YouTube

  • Medical Updates on CBD and MSA

    Yvette Bordelon, MD, PhD
    University of California, Los Angeles
    Download Slides | Watch on YouTube

  • Speaker Panel Q&A

    Lawrence Golbe, MD
    UMDNJ Robert Wood Johnson Medical School
    Yvette Bordelon, MD, PhD
    University of California, Los Angeles
    Watch on YouTube

  • Family Workshop: Getting Better Support

    Janet Edmunson, MEd
    JME Insights
    Download Slides

  • Patient-Only Discussion Group

    Kelley Harrison Pistacchio, PhD

  • Physical & Occupational Therapies: Improving Day-to-Day Life

    Terry Ellis, PhD, PT, NCS
    Center for Neurorehabilitation, Boston University
    Download Slides | Watch on YouTube

  • Speech & Language Therapies: Coping with Symptoms

    Heidi Phenix, MS, CCC-SLP
    Braintree Rehabilitation Hospital
    Download Slides | Watch on YouTube

  • Closing Remarks

    Richard Gordon Zyne, DMin
    President-CEO, CurePSP
    Watch on YouTube