The Cherie Levien Quality of Life Fund

Progressive supranuclear palsy (PSP) is a disease on the spectrum of prime of life neurodegenerative diseases, which often afflict people during productive, active years. PSP imposes not only suffering for the patient but crushing burdens on families and caregivers, which can lead to a multitude of problems including poor physical and mental health.

The Cherie Levien Quality of Life Fund was created to allow carepartners to take some time off from the rigors of caregiving while at the same time knowing that professional services are in place for their loved one. Research indicates that even temporary or intermittent relief of caregiving demands can help reduce stress and improve the quality of day-to-day life for carepartners as well as for the person who is suffering with the disease.

CurePSP is collaborating with Griswold Home Care, chosen to be the exclusive service provider, to provide the Cherie Levien Quality of Life grant. 

To find a Griswold service location near you via the interactive map, please click here. If you need help finding a location near you, please contact Griswold at 1-800-474-7965. If you don’t live in an area with a Griswold location, we recommend that you do not apply for this grant, as unfortunately we are unable to fund home care services offered by other agencies.

Application forms are available below for download or to request a print copy via regular mail, contact Joanna Teters at teters@curepsp.org or at 347-294-2871.

The grant amount is $2500 and is to be used over a period of 1 year from approval. Grants are limited and while not all applicants will be successful resubmissions are allowed and encouraged. 

We are actively fundraising to support more home care programs to meet the tremendous need of patients and caregivers. If you would like to become involved in a fundraising event to increase the reach of this fund, please contact Trish Caruana at 443-578-5667 or at caruana@curepsp.org.

Grant applications can be submitted anytime but the deadlines are as follows:

January 31, 2017

April 30, 2017

July 31, 2017

October 31, 2017 

Successful applicants will be contacted approximately 2 weeks after the deadline and given instructions on how to initiate services.

Eligibility requirements:

  • This grant is only available for those living in the United States.
  • Individuals must have a diagnosis of PSP and the diagnosis must be documented by a physician.
  • Only in-home respite services are reimbursable.  The patient must be living at home or with a family member and not in an assisted living or nursing facility.

Please download the application form or contact Joanna Teters (teters@curepsp.org) to receive an application by mail. Once completed, please email, fax or mail your application to the attention of:

Trish Caruana, MSW
Vice President-Patient & Carepartner Advocacy

CurePSP
404 Fifth Avenue, 3rd Floor
New York, NY 10018
Office: 443-578-5667
Fax: 410-785-7009

caruana@curepsp.org