One of the lessons Emma Wodwaski learned from her grandfather, who was diagnosed with PSP in 2015, was “to live life to its fullest,” and she still carries that with her now, five years after his passing. Sanjay Geevarghese’s grandmother came to live with him and his family in 2020 after her corticobasal degeneration diagnosis. His favorite part of the day is sitting with her after school. He views this and his other roles in her care as a source of hope for both of them to “keep going.” Emma and Sanjay connected with CurePSP through a shared motivation to be a resource for people their age who have personal experience with PSP, CBD and MSA, which led them to start a virtual support group for grandchildren and young adult children.

In this conversational-style webinar, moderated by Jessica Shurer, MSW, LCSW, CurePSP’s Director of Clinical Affairs and Advocacy, Emma and Sanjay will share their stories as told from their unique perspectives as grandchildren. They will speak about how they continue to draw inspiration from their relationships with their grandparents and impart their advice to people living with PSP, CBD, and MSA and people who care for and about them. There will be time at the end for Emma and Sanjay to answer questions from viewers.

This webinar will be available on the CurePSP YouTube channel after the event. We will email registrants a link when it’s ready.

Submit your questions via registration or email to events@curepsp.org.

Registration is free of charge.

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