CurePSP Virtual Fall Family Conference

When:
November 12, 2021 @ 11:00 am – 3:30 pm
2021-11-12T11:00:00-05:00
2021-11-12T15:30:00-05:00
Where:
Virtual Event
Cost:
$20

Join CurePSP for the Virtual Fall Family Conference!

Among its various educational activities, CurePSP organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD, and MSA and to develop a sense of community. We recognize that these diseases present daily challenges for patients and families. The conferences include various speakers with in-the-field expertise movement disorder specialists and allied health care providers who work directly with patients and their families. These experts address issues related to day-to-day life including the best ways to manage symptoms, the impact of the diseases on the family, and how to cultivate a perspective of meaning and joy despite the struggles of the disease. In addition to the educational facts learned during the session, patients, caregivers, and families learn that they are not alone.

The CurePSP Virtual Fall Family Conference will be dedicated to learning about techniques for patients, caregivers, and families living with the neurodegenerative diseases PSP, CBD, and MSA.

Agenda

Friday, November 12, 2021 (Eastern Time)

11:00am – 11:15am: Welcome with Dr. Kristophe Diaz, CurePSP, Executive Director & Chief Scientific Officer

11:15am – 12:00pm: Social, Communication & Swallowing Safety Needs with Matt McKeon, MS, CCC-SLP, Vocalize LLC

12:00pm – 12:45pm: Navigating Social Security Disability Insurance with Mary Jane Berry, RN, Parkinson’s & Movement Disorders Support Group

12:45pm – 1:30pm: Lunch

1:30pm – 2:30pm: Caregiver Perspective Panel with CurePSP Community Members + Jessica Shurer, MSW, LCSW, CurePSP, Director of Patient & Carepartner Advocacy

2:30pm – 3:15pm: Research Updates with Dr. Anne-Marie Wills, Massachusetts General Hospital & Harvard Medical School

3:15pm – 3:30pm: Closing with Jessica Shurer, MSW, LCSW, CurePSP, Director of Patient & Carepartner Advocacy

*If you are unable to afford the conference, please use the promo code CUREPSP21 during registration for a comped ticket.

REGISTER