Online Support Groups

Many people cannot travel to meet with an in-person support group, or do not want to attend one, but are still looking for the comradery and comfort they provide. CurePSP recognizes this need and sponsors online support groups that allow participants the opportunity to interact with other patients, caregivers, and family members affected by PSP, CBD, MSA, or related brain diseases by using their computer, telephone (charges may be incurred), or both. By using a computer the facilitator is able to share their screen with the attendees, and can share documents, images, and other visual aids. This has proven to be a very helpful feature for the sessions and beneficial for those attending. 

TO REGISTER AND USE:

  • Click the meeting link for the group that suits you and register for the online program
  • At the meeting time, use your computer to go online and follow the meeting link for your group
  • Follow the prompts and choose to either listen in with your computer’s microphone and speakers or follow the instructions to dial in with your phone (instructions also included below)

For more information about the meeting you want to participate in, please contact the Facilitator. If you have other questions about support services, please email info@curepsp.org.

*NEW* After the Loss: Bereavement Support Group for PSP/MSA/CBD Caregivers

Meeting Times: Thursday May 9, 2019, Thursday Sept 26, 2019 & Thursday January 16, 2020 EST
Meeting Link https://attendee.gotowebinar.com/register/2221842917582200834
Meeting Tel: (562) 247-8422; Access Code: 723-462-224
Facilitator: Lissa Kapust, lkapust@bidmc.harvard.edu, Elaine Book elaine.book@vch.ca

People with PSP

Meeting Times: 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern
Meeting Linkhttps://attendee.gotowebinar.com/register/505775738738034946 
Meeting Tel: +1 (415) 655-0060; Access Code: 642-071-485
Facilitator: Martha Kenney, martha.kenney75@gmail.com

Carepartners of People with PSP

Meeting Time: 3rd Tuesday of each month at 8:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/714412985
Meeting Tel: 914-339-0024; Access Code: 753-354-191
Facilitator: Janet Edmunson, phone 207-799-4963, email janet@janetedmunson.com

Meeting Time: 3rd Monday of each month at 6:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/629065833
Meeting Tel: +1 646-307-1721; Access Code: 888-602-095
Facilitator: Mike Flanagan (Canada), Phone 519-995-4073, email mikeflanagan1003@hotmail.com

Adult Children of People with PSP

Meeting Time: 2nd Wednesday of each month at 8:00pm EST 
Meeting Linkhttps://attendee.gotowebinar.com/register/8531299121767742977
Meeting Tel: (631) 992-3221; Access Code: 800-832-853
Facilitator: Laurie Spindler, email LaurieSHuffman@gmail.com

People with CBD and their Carepartners

Meeting Time: 1st Tuesday of each month at 6:00pm EST 
Meeting Link: https://attendee.gotowebinar.com/register/6112622030926313730
Meeting Tel: (213) 929-4232; Access Code: 611-128-331
Facilitator: Karry Forsythe, 903-683-0010, forsythe76@gmail.com

Meeting Time: 3rd Tuesday of each month at 4:00pm Eastern 
Meeting Link: https://www1.gotomeeting.com/register/893287256
Meeting Tel: 312-878-0222; Access Code: 602-587-662
Facilitator: Janet Edmunson, Phone 207-799-4963, email janet@janetedmunson.com

People with MSA

Meeting Time: 3rd Monday of each month at 8:00pm Eastern 
Meeting Linkhttps://attendee.gotowebinar.com/register/8182973838726361090
Meeting Tel: (914) 614-3221; Access Code: 500-058-061
Facilitator: Cathy Chapman, Phone 307-332-4144, email cec@wyoming.com 

Carepartners of People with MSA

Meeting Time: 1st Monday of each month from 8:00pm – 9:00pm Eastern 
Meeting Link: https://www2.gotomeeting.com/register/977578139
Meeting Tel: (415) 655-0060; Access Code: 950-759-636
Facilitator: Tom Tait, tom.tait@comcast.net, 856-725-2450

Carepartners Dealing with Advanced PSP

Meeting Time: 4th Wednesday of each month from 7:00pm – 8:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/609461433
Meeting Tel: 951-266-6124; Access Code: 289-328-424
Facilitator: Steve Garcia, Phone 973-962-9356, email steve801luv@gmail.com