Online Support Groups
CurePSP-sponsored online support groups allow participants the opportunity to interact with other patients, caregivers and family members affected by PSP, CBD, MSA, or related brain diseases by using their computer, telephone (charges may be incurred), or both. By using a computer the facilitator is able to share their screen with the attendees, and can share documents, images, and other visual aids. This has proven to be a very helpful feature for the sessions.
TO REGISTER AND USE:
- Click the meeting link, and register for the online program.
- At the meeting time, use your computer to go online and follow the meeting link for your group below.
- Follow the prompts and choose to either listen in with your computer’s microphone and speakers, or follow the instructions to dial in with your phone (instructions also included below).
For more information about the meetings, please contact the Facilitator. If you have other questions, please email email@example.com.
People with PSP
- Meeting Times: 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern
Meeting Link: https://attendee.gotowebinar.com/register/505775738738034946
Meeting Tel: +1 (415) 655-0060; Access Code: 642-071-485
Facilitator: Martha Kenney, firstname.lastname@example.org
Carepartners of People with PSP
- Meeting Time: 4th Tuesday of each month at 8:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/714412985
Meeting Tel: 914-339-0024; Access Code: 753-354-191
Facilitator: Janet Edmunson, phone 207-799-4963, email email@example.com
- Meeting Time: 3rd Monday of each month at 6:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/629065833
Meeting Tel: +1 646-307-1721; Access Code: 888-602-095
Facilitator: Mike Flanagan (Canada), Phone 519-995-4073, email firstname.lastname@example.org
Adult Children of People with PSP
- Meeting Time: 2nd Wednesday of each month at 8:00pm Eastern
Meeting Link: https://attendee.gotowebinar.com/register/8531299121767742977
Meeting Tel: (631) 992-3221; Access Code: 800-832-853
Facilitator: Laurie Spindler, email LaurieSHuffman@gmail.com
People with CBD and their Carepartners
- Meeting Time: 1st Sunday of each month at 7:00pm EST
Meeting Link: https://attendee.gotowebinar.com/register/6112622030926313730
Meeting Tel: (213) 929-4232; Access Code: 611-128-331
Facilitator: Karry Forsythe, 903-683-0010, email@example.com
- Meeting Time: 3rd Tuesday of each month at 4:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/893287256
Meeting Tel: 312-878-0222; Access Code: 602-587-662
Facilitator: Janet Edmunson, Phone 207-799-4963, email firstname.lastname@example.org
People with MSA
- Meeting Time: 3rd Monday of each month at 8:00pm Eastern
Meeting Link: https://attendee.gotowebinar.com/register/8182973838726361090
Meeting Tel: (914) 614-3221; Access Code: 500-058-061
Facilitator: Cathy Chapman, Phone 307-332-4144, email email@example.com