Online Support Groups

Many people cannot travel to meet with an in-person support group, or do not want to attend one, but are still looking for the comradery and comfort they provide. CurePSP recognizes this need and sponsors online support groups that allow participants the opportunity to interact with other patients, caregivers, and family members affected by PSP, CBD, MSA, or related brain diseases by using their computer, telephone (charges may be incurred), or both. By using a computer the facilitator is able to share their screen with the attendees, and can share documents, images, and other visual aids. This has proven to be a very helpful feature for the sessions and beneficial for those attending. 

TO REGISTER AND USE:

  • Click the meeting link for the group that suits you and register for the online program
  • At the meeting time, use your computer to go online and follow the meeting link for your group
  • Follow the prompts and choose to either listen in with your computer’s microphone and speakers or follow the instructions to dial in with your phone (instructions also included below)

For more information about the meeting you want to participate in, please contact the Facilitator. If you have other questions about support services, please email info@curepsp.org.

PSP/CBD 101: An Educational Support Series for the Newly Diagnosed

Meeting Times:  November 17, 18, 19, December 1, 2, 3 from 7:30-8:45pm
Registration Links:  
November: https://us02web.zoom.us/meeting/register/tZcvceCtrzIrG93K1coT4PjItmaWdQM3X1j4
December: https://us02web.zoom.us/meeting/register/tZcud–hpjwvHN1C2NPmBw6-0TJdLC9ycBPb
Facilitators:  Nancy Frehill, frehillnancy@gmail.com

Please register for only one month.

Please note that while we do offer other support groups for patients and families who are beyond the “early stages” of PSP, this group is reserved for those who are in the beginning stages of diagnosis and symptom development.

People with PSP/MSA/CBD and their Carepartners

Meeting Times:  October 14 & 28 at 3:00-4:30pm EST
Registration Link: https://us02web.zoom.us/meeting/register/tZEtcO6sqzspHtXUtmqAN93amV39diWvEbw4
Meeting Tel: +1 646 558 8656          Meeting ID:  850 7745 0341         
Facilitators:  Gregg Felice, LCSW-R felice@curepsp.org and Jessica Shurer MSW, LCSW jshurer@neurology.unc.edu

 

Carepartners of People with PSP/MSA/CBD

Meeting Times:  October 15 & 29 at 3:00pm-4:30pm EST
Registration Link:  https://us02web.zoom.us/meeting/register/tZAvceitrzotGdfteL8WR2LX01SjASUJ1Efr
Meeting Tel: +1 646 558 8656         Meeting ID:  842 6151 1733            
Facilitators:  Gregg Felice, LCSW-R felice@curepsp.org and Ileen McFarland, ileen@earthlink.net

 

(Women Only) Carepartners of People with PSP/MSA/CBD Support Group

Meeting Time(s):  First Thursday of each month from 2:30pm-3:30pm EST
Registration Link:  https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0
Meeting Tel: +1 646 558 8656     Meeting ID:  865 0612 9819
Facilitators:  Nancy Montgomery njmont76@gmail.com and Janis Appel jappel1130@gmail.com  

(Men Only) Carepartners of People with PSP/MSA/CBD Support Group

Meeting Times:  First Tuesday of each month from 8:00pm-9:00pm EST
Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj
Meeting Tel: +1 646 558 8656     Meeting ID:  865 1420 0051
Facilitators:  Tom Tait tom.tait@comcast.net and Bill Furlow billfurlownc@gmail.com  

People with PSP

Meeting Times: 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern
Meeting Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC
Meeting Tel: +1 646 558 8656    Meeting ID: 814 6632 5071
Facilitator: Martha Kenney, martha.kenney75@gmail.com

Carepartners of People with PSP

Meeting Time: 3rd Tuesday of each month at 8:00pm Eastern
Meeting Link: https://attendee.gotowebinar.com/register/7620701206235337739
Meeting Tel: 914-339-0024; Access Code: 753-354-191
Facilitator: Janet Edmunson, phone 207-799-4963, email janet@janetedmunson.com

People with CBD

Meeting Time: 1st Tuesday of each month at 6:00pm EST 
Meeting Link: https://attendee.gotowebinar.com/register/5979660310617949966
Meeting Tel: (213) 929-4232; Access Code: 611-128-331
Facilitator: Karry Forsythe, 903-683-0010, forsythe76@gmail.com

People with CBD and their Carepartners

Meeting Time: 3rd Tuesday of each month at 4:00pm Eastern 
Meeting Link: https://attendee.gotowebinar.com/register/4518021229651304459
Meeting Tel: 312-878-0222; Access Code: 602-587-662
Facilitator: Janet Edmunson, Phone 207-799-4963, email janet@janetedmunson.com

People with MSA

Meeting Time: 3rd Monday of each month at 8:00pm Eastern 
Meeting Link: https://attendee.gotowebinar.com/register/7413278337702908430
Meeting Tel: (914) 614-3221; Access Code: 500-058-061
Facilitator: Cathy Chapman, Phone 307-332-4144, email cec@wyoming.com 

Carepartners of People with MSA

Meeting Time: 1st Monday of each month from 8:00pm – 9:00pm Eastern 
Meeting Link: https://attendee.gotowebinar.com/register/2842346817270603534 
Meeting Tel: (415) 655-0060; Access Code: 950-759-636
Facilitator: Tom Tait, tom.tait@comcast.net, 856-725-2450

Adult Children of People with PSP

Meeting Time: 2nd Wednesday of each month at 8:00pm EST 
Meeting Link: https://attendee.gotowebinar.com/register/3583221941322075406
Meeting Tel: (631) 992-3221; Access Code: 800-832-853
Facilitator: Laurie Spindler, email LaurieSHuffman@gmail.com

Carepartners Dealing with Advanced PSP

Meeting Time: 4th Wednesday of each month from 7:00pm – 8:00pm Eastern
Meeting Link: https://attendee.gotowebinar.com/register/3428942867758679310
Meeting Tel: 951-266-6124; Access Code: 289-328-424
Facilitator: Steve Garcia, Phone 973-962-9356, email advancedstagespsp@gmail.com

 

After The Loss: A Bereavement Support Group for Carepartners

Meeting Times: 3rd Monday of each month at 2:00pm Eastern
Registration Link:  https://us02web.zoom.us/meeting/register/tZwtdu-urz8rHdSU-qMSeeVgfEAMunr3e7bp
Meeting Tel: +1 646 558 8656         Meeting ID: 880 1661 4170              
Facilitators: Gregg Felice, LCSW felice@curepsp.org and Meghan Sweeney, LCSW meghansweeney1@gmail.com

This group is intended only for those who have lost loved ones to PSP/MSA/CBD or a related disease in the past year.