Latest News from The Foundation

July 06, 2021

CurePSP’s clinical guide to rare neurodegenerative conditions is published by leading neurology journal

Frontiers in Neurology today published a consensus statement on the best practices in the clinical management of progressive supranuclear palsy (...

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June 16, 2021

FAQ on FDA Approval of Aducanumab

 On June 7, 2021, the FDA approved aducanumab, a monoclonal antibody made by Biogen, for use in Alzheimer’s disease in the US.  Here’s...

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June 03, 2021

VA plans expansion of benefits for disability claims for conditions related to certain toxic exposures

 New evaluation process to be applied in identifying future presumptive conditionVA announced today two major decisions related to presumptive co...

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April 20, 2021

CurePSP awards three new Venture Grants for the study of PSP and CBD

Studies will focus on toxic protein in the brain and genetic factorsCurePSP has awarded Venture Grants to three researchers studying tau protein patho...

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February 15, 2021

CurePSP and the Rainwater Charitable Foundation partner to support a collaborative biobanking platform for frontotemporal dementia research

Partnership will support efforts to enhance quantity and quality of neuropathologic FTD research worldwideThe Rainwater Charitable Foundation&nbs...

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December 18, 2020

UCB pauses the development of bepranemab for progressive supranuclear palsy

A note from Kristophe Diaz, PhD, CurePSP Vice President- Scientific AffairsTo our patients, caregivers, supporters, advocates, and volunteers:At CureP...

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December 15, 2020

Advisory on COVID-19 vaccines and PSP, CBD, and MSA from Lawrence I. Golbe, MD

Advisory on COVID-19 VaccinesFrom Lawrence I. Golbe, MD, Director of Clinical Affairs, CurePSPI am clinical director at CurePSP, a nonprofit based in...

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August 11, 2020

CurePSP Partners With Rainwater to Support Pioneering Neurodegeneration Research

Study will use ‘miniature brains’ cultivated from stem cells to study protein mutationsTweet thisNEW YORK–(BUSINESS WIRE)–CurePSP has awarded a $100,0...

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August 10, 2020

Promotus Launched as Global Alliance of PSP and CBD NGO’s

Will be key resource for patient advocacy, research, and clinical trialsTweet thisNEW YORK — Promotus (www.promotus.org) has been launched as a g...

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June 03, 2020

CurePSP Cancels In-Person Events

From Bill McFarland, Chair, Board of DirectorsOn behalf of the CurePSP, Inc., Board of Directors, I’m writing to let you know that given the...

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April 14, 2020

Scientific American Article Cites Tau Protein as Linchpin to Finding Neurodegeneration Cure

In a recently published article, “Tau Shows Promise as Achilles’ Heel for Alzheimer’s and Similar Diseases,” the respected journal Scientifi...

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March 27, 2020

Update Regarding COVID-19 Virus

We at CurePSP recognize that many of you coping with the struggles and challenges that PSP and other neurodegenerative diseases present may be facing...

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March 10, 2020

CurePSP’s approach during the coronavirus outbreak

To the CurePSP CommunityCurePSP’s approach during the coronavirus outbreakCurePSP’s primary concern during the coronavirus outbreak is the welfare of...

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March 10, 2020

Advisory on Coronavirus From Lawrence I. Golbe, MD

Advisory on PSP and the CoronavirusFrom Lawrence I. Golbe, MD, Director of Clinical AffairsThose with PSP are at special risk with regard to the coron...

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December 19, 2019

Biogen Ends Trial of Its Drug for PSP

Our Letter to the PSP Community Regarding Biogen Trial ResultsBy Lawrence I. Golbe, MD, Director of Scientific AffairsThe pharmaceutical company Bioge...

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September 13, 2019

CurePSP Image Library

Every year we are continuously growing our number of volunteers who are helping spread awareness and hosting fundraisers to support our vital programs...

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July 29, 2019

AbbVie Ends Tau Antibody Study

AbbVie has ended the clinical trial of its intravenously administered antibody designed to slow the progression of PSP when it failed to show benefit....

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July 29, 2019

CurePSP Awards Seven New Research Grants

NEW YORK–(July 29, 2019)–CurePSP, the foundation for prime of life neurodegeneration, has awarded grants to scientific research into progressive supra...

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April 11, 2019

The Mystery of My Brother’s Brain – a personal story

Laurence S. BraudeThis story comes to us from Solna Braude, who shares her brother’s journey in finding a definitive diagnosis for his neurological di...

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March 28, 2019

CurePSP Names Dr. Lawrence I. Golbe, Eminent Clinician, as Head of Scientific Affairs

He succeeds Dr. Alex Klein, who moves to UCB post in BrusselsDr. Lawrence I. GolbeNEW YORK (February 20, 2019) – CurePSP, the foundation for prime of...

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October 18, 2018

Mama’s Legacy

This story comes to us from Noha Al-Awadi about her mother and her battle with progressive supranuclear palsy. Tuesday, October 9th, 2018 ma...

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October 17, 2018

Rush University Medical Center Caregiver Study

Have You Been a Caregiver for Someone with Parkinson’s Disease, PSP, MSA, CBD, or a related disorder?You have learned a lot by caring for your loved o...

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October 11, 2018

In Conversation with John Burhoe, Sr.

On Friday, October 5, CurePSP Board Director Amy Branch sat down with John Burhoe Sr., CurePSP Chair Emeritus, to discuss his thoughts on the progress...

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September 27, 2018

FREE Webinar, October 18

Caregivers’ Search for MeaningFor family and professional caregiversby Janet Edmunson, M.Ed.WHEN: Thursday, October 18, 2018 (The webinar also wi...

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September 11, 2018

Global Citizen Festival, Ultimate VIP Tickets!

Once again, CurePSP has secured four (4) Ultimate VIP tickets to the Global Citizen Festival, in Central Park, New York, September 29.At a retail...

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September 10, 2018

Sundaes to Stop PSP raised nearly $9,000 for CurePSP’s programs and services!

Suburban Chicago Support Group’s First Fundraiser A Sweet SuccessBy Kathleen LoudenThe Glenview, Ill., CurePSP Support Group held our inaugural fundra...

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July 25, 2018

CurePSP supports four new studies through its Venture Grants program

Research will study genetic factors and tau-protein pathologies in progressive supranuclear palsy (PSP)NEW YORK–(BUSINESS WIRE)— CurePSP, the foundati...

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July 23, 2018

Complexities With PSP

This article by Niti Vaidya, our newest Peer Supporter in Mumbai, India, covers the small changes that occur with PSP that are often overlooked.Major...

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July 20, 2018

Types of Care and Care Facilities

This article was written by CurePSP contributor and volunteer, Diane B. Breslow, MSW, LCSW.What follows is an overview of the spectrum of care and car...

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July 19, 2018

Matching Grant Challenge!

Dear Community,The Light of Day Foundation is teaming up with you once again, through the Hope Tour, to fight progressive supranuclear...

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June 18, 2018

Remember Me Dancing

This article was published in the Tallahassee Democrat, May 19, 2018 I talked to my mother on Mother’s Day. Only it’s not really talking anymore;...

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June 12, 2018

New Clinical Trial

NEW CLINICAL RESEARCH TRIAL FOR PROGRESSIVE SUPRANUCLEAR PALSY (PSP) IS NOW RECRUITING  Progressive Supranuclear Palsy (PSP) is a neurodegen...

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June 06, 2018

CurePSP Receives Two-Year Grant from the Stavros Niarchos Foundation to Support Families with Caregiving Burdens

Grants are administered by CurePSP through its Cherie Levien Quality of Life Fund, supported by the Levien family, the Stavros Niarchos Foundation, an...

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May 03, 2018

Question and Answer with Ileen McFarland

Ileen McFarland, CurePSP Board Member and Dallas support group facilitator, talks to us about her upcoming event, Hope Squared, and about the motivati...

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April 23, 2018

Time To Go

This story comes to us from Rio Contrada, a young filmmaker and producer whose father, Fred Contrada, has progressive supranuclear palsy (PSP). Rio is...

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April 11, 2018

CurePSP Teams Up With the Tau Consortium

CurePSP and the Rainwater Charitable Foundation Launch the Prime of Life Brain InitiativeThe initiative will support neurodegeneration research with g...

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April 06, 2018

CurePSP Receives Generous $4,700 Grant From Community Foundation of Middlesex County

March 31, 2018 – New York, New York. CurePSP has received a generous grant of $4,700 from the Community Foundation of Middlesex County (CFMC)/Ryan’s C...

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April 05, 2018

Words From a Caregiver in India

In this beautifully written article on caregiver care, Niti Vaidya from India shows us that caregiving for a PSP sufferer is the same the world over....

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March 15, 2018

Right to Try

Washington, D.C., March 14, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representi...

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March 06, 2018

An Opportunity to Share Your Experience

We have been informed of a research project by a company wishing to learn, in detail, the patient and carepartner journey. This information will infor...

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February 28, 2018

NORD to Collaborate with FDA on Pilot Patient Engagement Activity

Posted by Christina Jensen, National Organization for Rare Disorders website, February 28, 2018 Washington, D.C., February 28, 2018—The National...

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February 27, 2018

10 Documents Every Caregiver Needs

Article by Lori Thomas, February 27, 2018, SeniorAdvice.comBeing a caregiver can sometimes be an overwhelming responsibility. Whether you are car...

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February 26, 2018

Currently Funded Research – CurePSP

Developing Treatments for Swallowing and Communication Deficits in PSPDR. MICHELLE S. TROCHE, COLUMBIA UNIVERSITYCurePSP is very excited to fund Dr. T...

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February 22, 2018

Simple Walking Test May Help Make Difficult Diagnosis

AMERICAN ACADEMY OF NEUROLOGY\PUBLIC RELEASE: 21-FEB-2018MINNEAPOLIS – There’s a cause of dementia that can sometimes be reversed, but it’s often...

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February 20, 2018

NORD Statement Regarding State Proposals to Alter Their Medicaid Program

Posted by Laura MullenWashington, D.C., February 8, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organi...

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February 18, 2018

Navigating Veterans’ Affairs for PSP Sufferers

One Family’s Struggle Inspires Them to Help OthersThis article appears in our Spring 2018 Newsletter.From 1967 to 1971, Thyra Burakowski’s husband, An...

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February 02, 2018

Caregiver Stress and Burnout

Tips for Regaining Your Energy, Optimism, and Hope an excerpt from the 2018 CurePSP GuidebookThe demands of caregiving can be overwhelming, espec...

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January 22, 2018

A Free Webinar, by Janet Edmunson

Minimizing Caregiver Fatigueby Janet Edmunson, M.Ed.For family and professional caregiversTuesday, March 6, 2018(The webinaralso will be recorded for...

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January 18, 2018

Launching the New Forum!

CurePSP is proud to present the new forum to our community of people affected by PSP, CBD, and related prime of life brain diseases.The previous forum...

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January 18, 2018

New Sleep Pattern Clinical Trial for PSP Patients

Study Currently Not RecruitingFor more information, contact Dr. Christine Walsh at Christine.Walsh@ucsf.eduAbout the StudyThe goal of this s...

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