https://us02web.zoom.us/meeting/register/tZAqf-CorTIiHdUFmS9Of21qfhFY5-CVJPZx

Feb
26
Mon
People with PSP
Feb 26 @ 7:30 pm – 8:30 pm

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August)

Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC

Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071

Facilitator: Margo Silk marsilk115@aol.com 609-265-7070

Feb
28
Wed
Care Partners of People with Advanced PSP/CBD/MSA
Feb 28 @ 7:00 pm – 8:00 pm

Meeting Time(s): 4th Wednesday of each month from 7:00pm – 8:00pm Eastern

Registration Link: https://us02web.zoom.us/meeting/register/tZIld–rqDsrHNVXbnPaifT8em6CI0IOSjSZ

Meeting Tel: 914-614-3221 Meeting ID: 732-403-054

Facilitator: Steve Garcia, 201-677-2542, advancedstagespsp@gmail.com

Mar
2
Sat
Young adult children and grandchildren of people with PSP/CBD/MSA
Mar 2 @ 2:00 pm – 3:00 pm

Meeting Time(s): 1st Saturday of every month from 2:00pm-3:00pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZEqceuorTwjH9F2SJcCo7NT9spGM84T_6jn 

Meeting Tel: +1 646 558 8656 Meeting ID: 857 6203 7955

Facilitator: Emma Wodwaski ewodwaski@gmail.com and Sanjay Geevarghese sanjaygeevarghese@gmail.com

Note: This meetup group is a space for people to connect, share, learn, brainstorm and be active in the cause. Both Sanjay and Emma have personal experience as grandchildren of people living with these diseases. You are welcome to reach out to them if you would prefer to connect individually or before attending the group, if you have questions or want to see if it is right for you.

Mar
4
Mon
Care Partners of People with MSA
Mar 4 @ 8:00 pm – 9:00 pm

Meeting Time(s): 1st Monday of each month from 8:00pm – 9:00pm Eastern

Registration Link: https://us02web.zoom.us/meeting/register/tZIqf-uhrDgoHdfeY_XXwpyWe602VedTnWbK 

Meeting Tel: +1 646 558 8656 Meeting ID: 867 8292 3273

Facilitator: Tom Tait, tom.tait@comcast.net, 856-725-2450

Mar
5
Tue
People with CBD and their Carepartners
Mar 5 @ 6:00 pm

Meeting Time(s): 1st Tuesday of every month at 6:00pm EST

Regisration Link: https://us02web.zoom.us/meeting/register/tZwrcu2vrTIsE9angifxZkh2PCyWI182Ouin

Meeting Tel: 213-929-4232 Meeting ID: 611-128-331

Facilitator: Karry Forsythe, forsythe76@gmail.com

Men Care Partners of People with PSP/ CBD/ MSA Support Group
Mar 5 @ 8:00 pm

Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj

Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051

Facilitators: Tom Tait tom.tait@comcast.net and Bill Furlow billfurlownc@gmail.com

Mar
7
Thu
Women Care Partners of People with PSP/CBD/MSA Support Group
Mar 7 @ 2:30 pm – 3:30 pm

Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0

Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819

Facilitator: Nancy Montgomery njmont76@gmail.com and Janis Appel jappel1130@gmail.com

Men Care Partners of People with PSP/ CBD/ MSA Support Group
Mar 7 @ 5:00 pm

Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj

Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051

Facilitators: Tom Tait tom.tait@comcast.net and Bill Furlow billfurlownc@gmail.com

Mar
11
Mon
People with PSP
Mar 11 @ 7:30 pm – 8:30 pm

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August)

Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC

Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071

Facilitator: Margo Silk, marsilk115@aol.com, 609-265-7070

Mar
13
Wed
Music Therapy Group
Mar 13 @ 4:00 pm – 5:00 pm

The CurePSP Music Therapy Group provides a platform to connect through music. Music therapy is the relational, clinical, and evidence-based use of music to accomplish individualized healthcare goals, including (but not limited to) motor functioning, improving physiological outcomes, psychosocial support, and emotional expression. Music therapy encounters facilitated by board certified music therapists (MT-BC) hold space for the lived experiences of patients with atypical parkinsonian disorders and their caregivers, positioning them as active collaborators in their care in ways that may differ from the typical medical environment. Each music therapy group will be framed around a grounding theme, incorporating opportunities to listen, sing, and move to live music and explore music-based coping strategies in community with others. No prior music experience required! This group will be led by Kerry Devlin and Kyurim Kang, neurologically-specialized music therapists from Johns Hopkins University.

Register

Adult Children of People with PSP/CBD/MSA
Mar 13 @ 8:00 pm

Meeting Time(s): 2nd Wednesday of each month at 8:00pm Eastern

Registration Link: https://us02web.zoom.us/meeting/register/tZUld-mhqzIiHNFXylFSnuvb-4o_0uW7Ydv_

Meeting Tel: +1 646 558 8656 Meeting ID: 818 0095 9865

Facilitator: Laurie Spindler, lspindler16@gmail.com

Mar
14
Thu
Care Partners of People with PSP/CBD/ MSA
Mar 14 @ 3:00 pm – 4:30 pm

Meeting Time(s): 2nd Thursday of every month from 3:00pm-4:30pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZAvceitrzotGdfteL8WR2LX01SjASUJ1Efr

Meeting Tel: +1 646 558 8656 Meeting ID: 842 6151 1733

Facilitator: Diane Breslow, LCSWdbreslow11@icloud.com and Ileen McFarland, ileen@earthlink.net

Mar
18
Mon
People with MSA
Mar 18 @ 8:00 pm

Meeting Time(s): 3rd Monday of each month at 8:00pm Eastern

Registration Link: https://us02web.zoom.us/meeting/register/tZUtf-CgrD0uG9CGa7yq3806EcOd8xhmUaqR

Meeting Tel: +1 646 558 8656 Meeting ID: 810 8982 6414

Facilitator: Cathy Chapman, 307-332-4144, cec@wyoming.com

Mar
19
Tue
After the Loss: A Bereavement Support Group for Care Partners
Mar 19 @ 2:00 pm

Meeting Time(s): 3rd Tuesday of each month at 2:00pm Eastern

Registration Link: https://us02web.zoom.us/meeting/register/tZwtdu-urz8rHdSU-qMSeeVgfEAMunr3e7bp

Meeting Tel: +1 646 558 8656 Meeting ID: 880 1661 4170

Facilitators: Diane Breslow, LCSW dbreslow11@icloud.com and Meghan Fera, LCSW meghansweeney1@gmail.com

People with CBD and their Carepartners
Mar 19 @ 4:00 pm

Meeting Time(s): 3rd Tuesday of each month at 4:00pm Eastern

Registration Link: https://us02web.zoom.us/meeting/register/tZ0rceGsrTgjE9GT-VhSaf90fppuYOn7cDSA#/registration

Meeting Tel: 631-992-3221 Meeting ID: 447-016-877

Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com

Carepartners of People with PSP
Mar 19 @ 8:00 pm

Meeting Time(s): 3rd Tuesday of each month at 8:00pm Eastern

Registration Link: https://attendee.gotowebinar.com/register/7620701206235337739

Meeting Tel: 562-247-8321 Meeting ID: 739-162-551

Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com

Mar
20
Wed
Flying Solo: A group for PSP/CBD/MSA patients living alone or without a carepartner.
Mar 20 @ 2:00 pm – 3:30 pm

Meeting Time(s): Third Wednesday of each month from 2:00-3:30pm EST April 2023 meeting will meet on the Fourth Wednesday, April 26th
Registration Link: https://us02web.zoom.us/meeting/register/tZUtf-qoqj0tE9wLCP-ddhcG3P1duHQPPv8a
Meeting Tel: 1 669 900 9128 Meeting ID: 810 8304 6798
Facilitator: Diane Breslow, LCSW,  and Adriana Gonzalez, LCSW, 

Women Care Partners of People with PSP/CBD/MSA Support Group
Mar 20 @ 6:30 pm – 8:00 pm

Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0

Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819

Facilitator: Nancy Montgomery njmont76@gmail.com and Janis Appel jappel1130@gmail.com

Mar
21
Thu
Anyone Impacted by PSP/CBD/MSA
Mar 21 @ 3:00 pm – 4:30 pm

This group is for any diagnosed individuals, carepartners, families, friends, etc.


Meeting Time(s): 3rd Thursday of every month from 3:00pm-4:30pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZEtcO6sqzspHtXUtmqAN93amV39diWvEbw4

Meeting Tel: +1 646 558 8656 Meeting ID: 850 7745 0341

Facilitators: Jessica Shurer MSW, LCSW shurer@curepsp.org , Diane Breslow, LCSW dbreslow11@icloud.com

Mar
25
Mon
People with PSP
Mar 25 @ 7:30 pm – 8:30 pm

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August)

Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC

Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071

Facilitator: Margo Silk marsilk115@aol.com 609-265-7070

Mar
27
Wed
Care Partners of People with Advanced PSP/CBD/MSA
Mar 27 @ 7:00 pm – 8:00 pm

Meeting Time(s): 4th Wednesday of each month from 7:00pm – 8:00pm Eastern

Registration Link: https://us02web.zoom.us/meeting/register/tZIld–rqDsrHNVXbnPaifT8em6CI0IOSjSZ

Meeting Tel: 914-614-3221 Meeting ID: 732-403-054

Facilitator: Steve Garcia, 201-677-2542, advancedstagespsp@gmail.com

Apr
1
Mon
Care Partners of People with MSA
Apr 1 @ 8:00 pm – 9:00 pm

Meeting Time(s): 1st Monday of each month from 8:00pm – 9:00pm Eastern

Registration Link: https://us02web.zoom.us/meeting/register/tZIqf-uhrDgoHdfeY_XXwpyWe602VedTnWbK 

Meeting Tel: +1 646 558 8656 Meeting ID: 867 8292 3273

Facilitator: Tom Tait, tom.tait@comcast.net, 856-725-2450

Apr
2
Tue
People with CBD and their Carepartners
Apr 2 @ 6:00 pm

Meeting Time(s): 1st Tuesday of every month at 6:00pm EST

Regisration Link: https://us02web.zoom.us/meeting/register/tZwrcu2vrTIsE9angifxZkh2PCyWI182Ouin

Meeting Tel: 213-929-4232 Meeting ID: 611-128-331

Facilitator: Karry Forsythe, forsythe76@gmail.com

Men Care Partners of People with PSP/ CBD/ MSA Support Group
Apr 2 @ 8:00 pm

Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj

Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051

Facilitators: Tom Tait tom.tait@comcast.net and Bill Furlow billfurlownc@gmail.com

Apr
4
Thu
Women Care Partners of People with PSP/CBD/MSA Support Group
Apr 4 @ 2:30 pm – 3:30 pm

Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0

Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819

Facilitator: Nancy Montgomery njmont76@gmail.com and Janis Appel jappel1130@gmail.com

Men Care Partners of People with PSP/ CBD/ MSA Support Group
Apr 4 @ 5:00 pm

Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj

Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051

Facilitators: Tom Tait tom.tait@comcast.net and Bill Furlow billfurlownc@gmail.com

Apr
6
Sat
Young adult children and grandchildren of people with PSP/CBD/MSA
Apr 6 @ 2:00 pm – 3:00 pm

Meeting Time(s): 1st Saturday of every month from 2:00pm-3:00pm EST

Registration Link: https://us02web.zoom.us/meeting/register/tZEqceuorTwjH9F2SJcCo7NT9spGM84T_6jn 

Meeting Tel: +1 646 558 8656 Meeting ID: 857 6203 7955

Facilitator: Emma Wodwaski ewodwaski@gmail.com and Sanjay Geevarghese sanjaygeevarghese@gmail.com

Note: This meetup group is a space for people to connect, share, learn, brainstorm and be active in the cause. Both Sanjay and Emma have personal experience as grandchildren of people living with these diseases. You are welcome to reach out to them if you would prefer to connect individually or before attending the group, if you have questions or want to see if it is right for you.

Apr
8
Mon
PSP/CBD/MSA 101 (Day 1/3)
Apr 8 @ 1:00 pm – 2:00 pm

PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will address issues of concern specific to this population. Please note that while we do offer other support groups for patients and families who are beyond the “early stages” of disease progression, this group is reserved for those who are in the beginning stages of diagnosis and symptom development.

Register Here

People with PSP
Apr 8 @ 7:30 pm – 8:30 pm

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August)

Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC

Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071

Facilitator: Margo Silk, marsilk115@aol.com, 609-265-7070

Apr
9
Tue
PSP/CBD/MSA 101 (Day 2/3)
Apr 9 @ 1:00 pm – 2:00 pm

PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will address issues of concern specific to this population. Please note that while we do offer other support groups for patients and families who are beyond the “early stages” of disease progression, this group is reserved for those who are in the beginning stages of diagnosis and symptom development.

Register Here

Online Support Groups

Many people cannot travel to meet with an in-person support group, or do not want to attend one, but are still looking for the comradery and comfort they provide. CurePSP recognizes this need and sponsors online support groups that allow participants the opportunity to interact with other patients, caregivers, and family members affected by PSP, CBD, MSA, or related brain diseases by using their computer, telephone (charges may be incurred), or both. By using a computer the facilitator is able to share their screen with the attendees, and can share documents, images, and other visual aids. This has proven to be a very helpful feature for the sessions and beneficial for those attending. 

TO REGISTER AND USE:

  • Click the meeting link for the group that suits you and register for the online program
  • At the meeting time, use your computer to go online and follow the meeting link for your group
  • Follow the prompts and choose to either listen in with your computer’s microphone and speakers or follow the instructions to dial in with your phone (instructions also included below)

For more information about the meeting you want to participate in, please contact the Facilitator. If you have other questions about support services, please email info@curepsp.org.

PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed

Meeting Times: October 19, 20, 21 from 3 – 4:15pmET
Registration Links:  

October series: 

https://us02web.zoom.us/meeting/register/tZMudOCoqTgvGNbTEV0MpV-Ho9FSwsH_9o0l

Facilitators:  Joanna Teters teters@curepsp.org, Kelsey Woods woods@curepsp.org

Please register for only one month.

Please note that while we do offer other support groups for patients and families who are beyond the “early stages” of PSP, CBD or MSA, this group is reserved for those who are in the beginning stages of diagnosis and symptom development.

People with PSP/MSA/CBD and their Carepartners

Meeting Times:  Third Thursday of each month from 3:00pm-4:30pm EST
Registration Link: https://us02web.zoom.us/meeting/register/tZEtcO6sqzspHtXUtmqAN93amV39diWvEbw4
Meeting Tel: +1 646 558 8656          Meeting ID:  850 7745 0341         
Facilitators:  Diane Breslow MSW, LCSW dbreslow11@icloud.com and Jessica Shurer MSW, LCSW jshurer@neurology.unc.edu

 

Carepartners of People with PSP/MSA/CBD

Meeting Times:  Second Thursday of each month from 3:00pm-4:30pm
Registration Link:  https://us02web.zoom.us/meeting/register/tZAvceitrzotGdfteL8WR2LX01SjASUJ1Efr
Meeting Tel: +1 646 558 8656         Meeting ID:  842 6151 1733            
Facilitators: Diane Breslow MSW, LCSW dbreslow11@icloud.com and Ileen McFarland, ileen@earthlink.net

 

(Women Only) Carepartners of People with PSP/MSA/CBD Support Group

Meeting Time(s):  First Thursday of each month from 2:30pm-4pm EST and Third Wednesday of the month from 6:30-8pm ET
Registration Link:  https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0
Meeting Tel: +1 646 558 8656     Meeting ID:  865 0612 9819
Facilitators:  Nancy Montgomery njmont76@gmail.com and Janis Appel jappel1130@gmail.com  

(Men Only) Carepartners of People with PSP/MSA/CBD Support Group

Meeting Times:  First Tuesday of each month from 8:00pm-9:00pm EST and first Thursday of each month from 5:00pm-6:00pm EST
Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj
Meeting Tel: +1 646 558 8656     Meeting ID:  865 1420 0051
Facilitators:  Tom Tait tom.tait@comcast.net and Bill Furlow billfurlownc@gmail.com  

People with PSP

Meeting Times: 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern
Meeting Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC
Meeting Tel: +1 646 558 8656    Meeting ID: 814 6632 5071
Facilitator: Margo Silk, marsilk115@aol.com

Carepartners of People with PSP

Meeting Time: 3rd Tuesday of each month at 8:00pm Eastern
Meeting Link: https://attendee.gotowebinar.com/register/7620701206235337739
Meeting Tel: 914-614-3221; Access Code: 732-403-054
Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com

Carepartners of People with Advanced PSP

Meeting Time: 4th Wednesday of each month from 7:00pm – 8:00pm Eastern
Meeting Link: https://attendee.gotowebinar.com/register/8583419301916409613
Meeting Tel: 914-614-3221; Access Code: 732-403-054
Facilitator: Steve Garcia, 973-962-9356, advancedstagespsp@gmail.com

 

People with CBD and their Carepartners

Meeting Time: 1st Tuesday of each month at 6:00pm EST 
Meeting Link: https://us02web.zoom.us/meeting/register/tZwrcu2vrTIsE9angifxZkh2PCyWI182Ouin
Meeting Tel: (213) 929-4232; Access Code: 611-128-331
Facilitator: Karry Forsythe, 903-683-0010, forsythe76@gmail.com

People with CBD and their Carepartners

Meeting Time: 3rd Tuesday of each month at 4:00pm Eastern 
Meeting Link: https://attendee.gotowebinar.com/register/6157272128304268816
Meeting Tel: 631-992-3221; Access Code: 447-016-877
Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com

People with MSA

Meeting Time: 3rd Monday of each month at 8:00pm Eastern 
Meeting Link: https://us02web.zoom.us/meeting/register/tZUtf-CgrD0uG9CGa7yq3806EcOd8xhmUaqR 
Meeting Tel: +1 646 558 8656 Access Code: 810 8982 6414
Facilitator: Cathy Chapman, 307-332-4144, cec@wyoming.com 

Carepartners of People with MSA

Meeting Time: 1st Monday of each month from 8:00pm – 9:00pm Eastern 
Meeting Link: https://us02web.zoom.us/meeting/register/tZIqf-uhrDgoHdfeY_XXwpyWe602VedTnWbK
Meeting Tel: +1 646 558 8656 Access Code: 867 8292 3273
Facilitator: Tom Tait, tom.tait@comcast.net, 856-725-2450

Stronger Together: Support for Gen Z Affected by PSP/CBD/MSA

Meeting Time: 4th Wednesday of each month at 3:00pm EST 
Meeting Link: https://us02web.zoom.us/meeting/register/tZEtd-mrrTkiEtGEHGBS-uB-AmiKAocBkeUP 
Meeting Tel: (646) 558-8656; Access Code: 850 0033 2885
Facilitator: Emma Wodwaski wodwasec@udmercy.edu and Nathan Wodwaski wodwasnj@udmercy.edu

Adult Children of People with PSP/CBD/MSA

Meeting Time: 2nd Wednesday of each month at 8:00pm EST 
Meeting Link: https://us02web.zoom.us/meeting/register/tZUld-mhqzIiHNFXylFSnuvb-4o_0uW7Ydv_ 
Meeting Tel: +1 646 558 8656 ; Access Code: 818 0095 9865
Facilitator: Laurie Spindler, email lspindler16@gmail.com 

After The Loss: A Bereavement Support Group for Carepartners

Meeting Times: 3rd Tuesday of each month at 2:00pm Eastern
Registration Link:  https://us02web.zoom.us/meeting/register/tZwtdu-urz8rHdSU-qMSeeVgfEAMunr3e7bp
Meeting Tel: +1 646 558 8656         Meeting ID: 880 1661 4170              
Facilitators: Diane Breslow MSW, LCSW dbreslow11@icloud.com and Meghan Sweeney, LCSW meghansweeney1@gmail.com

This group is intended only for those who have lost loved ones to PSP/MSA/CBD or a related disease in the past year.